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Introduction Video
Last modified by Gerritjan Koekkoek on 2009/08/15 07:32
In 2009 World Conference in for Cornelia de Lange syndrome, in Brighton, we announced the new multi-language website.
Each member country can translate all the information, creating a information hub about this rare syndrome.
The site contains the 'Ask the Doctor'. Questions about the syndrome are collected and transalted so that others can view the question and answer. This creates a unique information source that will help families, caregivers and medical people who are not so familiar with this syndrome.
Each member country can translate all the information, creating a information hub about this rare syndrome.
The site contains the 'Ask the Doctor'. Questions about the syndrome are collected and transalted so that others can view the question and answer. This creates a unique information source that will help families, caregivers and medical people who are not so familiar with this syndrome.
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Created by Gerritjan Koekkoek on 2009/08/15 06:43
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World associations
CdLS is worldwide present, all information is available in
English
but if you want to change the language click on a flag of one of the supportgroups in CdLS World
but if you want to change the language click on a flag of one of the supportgroups in CdLS World
Number of associations:
19
Disclaimer -
All of the information contained within these questions and answers is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: umugler@aol.com
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