Scientific Advisory Council (SAC) Members
Last modified by Ulla Mugler on 2009/07/07 22:44
The International Scientific Advisory Council (SAC) includes medical profesionals from around the world. The SAC also has a network of associate members of different disciplines in different countries who provide support and advice for people with CdLS wherever they may be. It is a guiding principle of the Federation and its SAC that information should be shared. Doctors regularly travel to different parts of the world to share their experiences and talk to careers of affected CdLS people.
The SAC is composed of doctors and other professionals who took the responsibility of sharing the knowledge of specialties. Their aim is to help families, searchers and other professionals to understand the complexity of the syndrome. The SAC is also composed of “Professionals Directors” from all over the world representing the Federation amongst their own professionals communities and are a focal point for the SAC information in that country.
----
Chairman: Angelo Selicorni (Italy, PD)
Emeritus Professor:
Laird Jackson (USA)
Education:
Mary Morse (USA)
Emanuele Basile (Italy)
Vocational Rehabilitation/OT/PT
Amy Metrena (USA)
Milagros Cordero (USA)
Psychology:
John Morse (USA)
Behaviour:
Tom Gualtieri (USA)
Chris Oliver (UK)
Psychiatry:
Eileen Ahearn (USA)
Marco Grados (USA)
Speech & Language/feeding:
Marjorie Goodban (USA)
Cheri Carrico (USA)
Ophthalmology:
Alex Levin (Canada PD)
Ken Nischal (UK)
Research Genetics:
Laird Jackson (USA) Iain Krantz (USA)
Tom Strachan (UK)
Research: Developmental Biology
Anne Caloff (USA)
Clinical Genetics:
Toni Kline (USA PD)
Angelo Selicorni (Italy PD)
David Fitzpatrick (UK PD)
Armand Bottani (Switzerland PD)
Meredith Wilson (Australia PD)
Raoul Hennekam (Netherlands PD)
Valérie Cormier-Daire (France PD)
ENT:
Bob Sataloff (USA)
Paola Marchisio (Peds, Italy)
Paediatrics:
Jolanta Wierzba (PD, Poland)
Orthopaedics:
Antonio Memeo (Italy)
Paul Sponseller (USA)
Neurophysiologist/Neurology:
Carsten Bonnemann (USA)
José Pedro Vieira (Portugal PD)
Radiologist:
Mark Kliewer (USA)
GI Medical:
Carol Potter (USA)
Peter Gillett (UK)
Peggy Marcon (Canada)
GI Surgery:
Sergio Luzzani (Italy)
Dentistry:
Dick Mungo (USA)
Doug Clemens (USA)
Nutrition:
Joni Rampolla (USA)
OB/Gyn:
Natalie Blagowidow (USA)
Shoko Shimizu (Japan)Shoko Shimizu (Japan)
Neonatology:
Luigi Memo
Anaesthesia:
Aaron Zuckerberg (USA)
Cardiology:
Anna Maria Colli (Italy)
The SAC is composed of doctors and other professionals who took the responsibility of sharing the knowledge of specialties. Their aim is to help families, searchers and other professionals to understand the complexity of the syndrome. The SAC is also composed of “Professionals Directors” from all over the world representing the Federation amongst their own professionals communities and are a focal point for the SAC information in that country.
----
INTERNATIONAL SCIENTIFIC ADVISORY COUNCIL Members
Chairman: Angelo Selicorni (Italy, PD)
Emeritus Professor:
Laird Jackson (USA)
Education:
Mary Morse (USA)
Emanuele Basile (Italy)
Vocational Rehabilitation/OT/PT
Amy Metrena (USA)
Milagros Cordero (USA)
Psychology:
John Morse (USA)
Behaviour:
Tom Gualtieri (USA)
Chris Oliver (UK)
Psychiatry:
Eileen Ahearn (USA)
Marco Grados (USA)
Speech & Language/feeding:
Marjorie Goodban (USA)
Cheri Carrico (USA)
Ophthalmology:
Alex Levin (Canada PD)
Ken Nischal (UK)
Research Genetics:
Laird Jackson (USA) Iain Krantz (USA)
Tom Strachan (UK)
Research: Developmental Biology
Anne Caloff (USA)
Clinical Genetics:
Toni Kline (USA PD)
Angelo Selicorni (Italy PD)
David Fitzpatrick (UK PD)
Armand Bottani (Switzerland PD)
Meredith Wilson (Australia PD)
Raoul Hennekam (Netherlands PD)
Valérie Cormier-Daire (France PD)
ENT:
Bob Sataloff (USA)
Paola Marchisio (Peds, Italy)
Paediatrics:
Jolanta Wierzba (PD, Poland)
Orthopaedics:
Antonio Memeo (Italy)
Paul Sponseller (USA)
Neurophysiologist/Neurology:
Carsten Bonnemann (USA)
José Pedro Vieira (Portugal PD)
Radiologist:
Mark Kliewer (USA)
GI Medical:
Carol Potter (USA)
Peter Gillett (UK)
Peggy Marcon (Canada)
GI Surgery:
Sergio Luzzani (Italy)
Dentistry:
Dick Mungo (USA)
Doug Clemens (USA)
Nutrition:
Joni Rampolla (USA)
OB/Gyn:
Natalie Blagowidow (USA)
Shoko Shimizu (Japan)Shoko Shimizu (Japan)
Neonatology:
Luigi Memo
Anaesthesia:
Aaron Zuckerberg (USA)
Cardiology:
Anna Maria Colli (Italy)
